Wow, the catch up… I knew it had been awhile but I did not think it had been THAT long since I last blogged! I have you tube videos that have been uploaded and yet not blogged about and I have videos still to be You tubed (new word!) and some still to be filmed – so basically I have been a very bad blogger! Soooo, now that we have established that let me fill you in!
The catch up…
Firstly Soraya is still gorgeous although also infuriating! She has two sides, super cute, gorgeous, amazing, beautiful and smiley and screaming, nothing can soothe me and I can do this for hours… oh yes! And there is no in between – it is one or the other! But more on that later. Let’s continue with the catch up.
Apart from the obligatory how on earth do I even have time to wash, let alone have all children, cleaned, dressed and housework done we have also had some drama in our family….
My eldest Kiesha, who is 18, was away at Army Camp when we received a phone call asking if she suffered from fits, on enquiry I was told “like Epileptic fits”. The simple answer is no, not before anyway. When we eventually got a call back after an agonising half a century later (well, that was how it felt) we were told an ambulance had been called and she was being taken to Western General Hospital. This was a 2 – 2.5hr journey for us. We called and got emergency childcare in place (ie grandparents) and off we went with that calm exterior and yet completely panicking inside look about us.
Now, I am calm by nature, even in tough situations and especially in emergencies… As we arrived at A&E Kiesha had another seizure and I have to say it shocked me to the core. Of course I stayed calm so that when she came round she could see that everything was going to be fine and well, that she did not need to worry etc… but as they wheeled her off for a CT scan to say I broke down would be an understatement. From there on in Mark and I were with Kiesha Day and night for nearly 2 weeks. I am sure I was experiencing what people describe as vertigo but mine was purely down to lack of sleep.
Plus I also had Soraya with me and was still beast feeding her too.
The above picture was during one of the better moments when Kiesha was receiving some Soraya therapy.. By this time we had been transferred to Southmead hospital in Bristol and I was unable to stay with Kiesha so Mark and I were often travelling back and forth in the early hours to also ensure one of us was caring for our other children whilst one of us was with Kiesha.
I have to say that as a Mum, as a parent being torn between your children has got to be one of the worst situations and feelings ever. The journey was now at least 3 – 3.5hrs and our fuel bill was going through the roof but that is the last thing you think about when things like this happen.
Kiesha had a number of tests and EEG etc.. and all showed that luckily she was not suffering from epilepsy and neither did she need any brain surgery. She has been diagnosed with Non-epileptic attack disorder and was in hospital for just over a month. She is now at home but with no after care plan accept a follow up appointment in 6-8 weeks time so, I am feeling less than happy. All communication has had to be from me calling and the reluctance to give any information is well appalling. Yes I know Kiesha is now 18, BUT she is still in the family home, still at college etc… we are not talking about someone that has got everything in life sorted and is completely independent. Therefore I still feel we need to know what we can do to support and help as other wise we could inadvertently be making things worse. Urghhh it is just so frustrating – so we are calling all areas, departments, doctors, specialists etc… to see if we can get Kiesha the help and support she needs.
This is part of the reason it feels as though time has been against me in updating the blog and really my priority was her, my other children and having enough about me to drive, hold a conversation and occasionally work out of necessity to ensure we had some money coming in. Marks work were amazing and just swapped holiday around which was phenomenal.
The difficulty and the blessing with young children is that everything is in the moment meaning that they knew Kiesha was not well but hey we have a new frozen colouring book and can you colour this picture with me please? It forces you to carry on but you also cannot help but feel when something like this happens that the world is meant to at least slow down if not just stop for a moment so you can just breathe and catch up.
Now we are at the point of saying goodbye to all the teachers at Grace’s Nursery as she will be starting Pre-school in September and saying goodbye to all the teachers in Pre-school as Kiesha will be starting School in September. Thus, time for me seems quite the contrary, instead of slowing down it is in top gear and moving as fast as it possibly can!